Share Your Story | We Want To Hear About Your POTS Journey

Gnarly Tree | POTS | Interview Questionnaire

Hello, We’d love to learn more about your journey. We have a wide range of questions here, 20 Questions! You certainly don't need to answer them all. Feel free to answer as many questions as you’d like! But, we need at least 10 of the questions answered in order to create a good personal story.

What is your name? (We will publish this name with the article if we use your interview. But you can certainly remain Anonymous if you like)

How did your POTS journey begin? (Include symptoms, triggers, or events that led to diagnosis)

How long did it take to get diagnosed, and what was that process like?

Did doctors perform any specific tests to confirm your diagnosis? If so, which ones?

Do you know your POTS subtype (e.g., hyperadrenergic, neuropathic, hypovolemic)?

Do you have any coexisting or related conditions (e.g., EDS, MCAS, autoimmune disorders)?

What symptoms affect you the most on a daily basis?

How does POTS impact your daily life, routines, or independence?

Have you made any dietary changes that helped manage your symptoms?

Do you use any supportive equipment (e.g., compression garments, mobility aids, cooling gear)?

What treatments or therapies have been most effective for you?

Have you tried any complementary therapies (e.g., acupuncture, salt baths, meditation)?

How do you manage flares or bad days?

What role does mental health play in your journey, and how do you support it?

Have you had to make changes to work, school, or social life due to POTS?

What kind of support system do you have (family, friends, online communities)?

Have you experienced any misunderstandings or challenges with doctors or others about your condition?

What advice would you give to someone newly diagnosed with POTS?

Is there a moment in your journey that stands out as especially difficult or empowering?

What do you wish more people understood about living with POTS and dysautonomia?

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Share Your Story | We Want to Hear About Your POTS Journey

Gnarly Tree | POTS | Interview Questionnaire

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