Personal Stories with POTS

self portrait Here is where you’ll discover a rich collection of personal stories from individuals navigating various life experiences with POTS. From everyday triumphs to profound challenges, these narratives offer heartfelt insights, relatable reflections, and real-life adjustments that go beyond simple facts. You’ll find a growing collection of diverse perspectives, including my own journey and experiences, as well as powerful stories submitted by our community. Explore these shared journeys to foster a deeper understanding and connection.

Check back for ongoing updates as we continue documenting life through diverse perspectives.

Share Your POTS Story

Share Your POTS Story | We Want to Hear About Your Journey

Unveiling the Unseen: Your Personal POTS Journey Share Your POTS Story with others. Living with a chronic illness often feels like navigating a labyrinth with invisible walls. For those battling Postural Orthostatic Tachycardia Syndrome, or POTS, this analogy rings particularly true. It’s a condition that, while impacting millions worldwide, remains largely misunderstood by the general […]

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Edinburgh Art Studio | Jason Pogo

Art Therapy for Chronic Illness | How Creativity Became My Lifeline with POTS, EDS, and Neurological Challenges

Introduction: Art Therapy for Chronic Illness Art therapy for chronic illness has become the cornerstone of my daily life. Living with severe Secondary POTS from a PONS stroke caused by EDS, along with PPPD, polyplopia, tinnitus, and small fiber neuropathy, I’ve had to redefine what it means to be productive, expressive, and fulfilled. Art is

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Vestibular

Living Through a Vestibular Migraine Flare-Up | My Story of Spinning, Tinnitus, and Resilience

Introduction Vestibular migraine flare-ups are among the most debilitating experiences I face in my daily life. These episodes, which stem from my complex medical background—including severe secondary POTS from a PONS stroke caused by EDS, PPPD, polyplopia, tinnitus, and neuropathy—leave me spinning for days at a time (up to 10 days). This post is my

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bad days with EDS POTS

One of Those Days | Navigating Ehlers-Danlos Syndrome and POTS Bad Days

The Unseen Battle of a “Bad Day” Navigating Ehlers-Danlos Syndrome and POTS bad days means experiencing a spectrum of physical sensations, and some days are undeniably worse than others. While I’ve learned there’s always a “worse” day lurking, these particular “bad days” are a unique blend of familiar symptoms amplified, a visceral reminder of the

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Daily Juicing System for POTS & Health

Daily Juicing System for POTS & Health | A Simple Method That Works

Why Juicing Every Morning Sets the Tone for Health Daily juicing is more than just nutrition—it’s a system for maintaining stability when living with POTS. While the effects aren’t instantly noticeable, this routine ensures your body consistently receives essential nutrients. By having a structured, stress-free approach, you remove the guesswork from health maintenance. Making Juicing

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Heat Sensitivity and POTS

Heat Sensitivity and POTS | How the Sun Can Trigger an Uncontrollable Sweat Cascade

The Unexpected Heat Trap Heat sensitivity with POTS sneaks up without warning. The first touch of sunlight on my skin feels familiar, even pleasant. It’s easy to assume everything is fine—until it suddenly isn’t. One moment, I’m enjoying the warmth, and the next, my body starts to sweat uncontrollably. There’s no gradual buildup, no time

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