Outreach Messaging for POTS
Common Symptoms You Might Experience
- Fast heart rate when standing
- Lightheadedness or fainting
- Fatigue that worsens with activity
- Brain fog or trouble concentrating
- Nausea, bloating, or GI issues
- Shakiness, sweating, or temperature sensitivity
- Chest pain or palpitations
- Headaches or blurry vision
How to Talk to Your Provider
You can say something like:
“I’ve been experiencing symptoms that match Postural Orthostatic Tachycardia Syndrome (POTS). I’d like to explore testing and treatment options. I have a guide that outlines the basics if you’re open to reviewing it together.”
What to Ask For
You can request:
How often do you eat small meals to manage your symptoms?
- Orthostatic vitals (heart rate and blood pressure lying down, then standing)
- Tilt table test (if available)
- Basic labs: CBC, CMP, TSH, ferritin, B12
- Referral to cardiology or neurology
- Compression garments or salt/fluid guidance
- Medication options (e.g., beta blockers, fludrocortisone, midodrine)
Tips for Managing Symptoms
- Drink 2–3 liters of water daily
- Increase salt intake (unless contraindicated)
- Wear compression garments (waist-high)
- Exercise lying down or seated (recumbent bike, rowing)
- Break tasks into smaller steps
- Use cooling tools or fans if heat-sensitive
If You Feel Dismissed
It’s okay to say:
“I understand this condition isn’t widely known. I’m not asking for a diagnosis today—I’m asking for help exploring what’s going on and ruling out POTS or related conditions.”
You deserve to be heard. If needed, ask for a second opinion or referral.
Helpful Resources
- Dysautonomia International
- Stand Up to POTS
- POTS UK
- [MyChart or local health portals] for messaging providers
📝 Your Info (Fill Out Before Your Appointment)
| Item | Notes |
|---|---|
| Main symptoms | [e.g., dizziness, fatigue, brain fog] |
| When symptoms started | [Month/Year] |
| What helps | [e.g., lying down, fluids] |
| What makes it worse | [e.g., standing, heat] |
| Medications/supplements | [List here] |
| Diagnoses (if any) | [e.g., EDS, MCAS] |
| Questions for provider | [Write 2–3 here] |
Outreach Message Template for Patients Seeking POTS-Aware Providers
Subject: Seeking Support for Postural Orthostatic Tachycardia Syndrome (POTS)
Message:
Hello [Provider’s Name or Clinic Team],
My name is [Your Name], and I’m reaching out as a local patient seeking support for Postural Orthostatic Tachycardia Syndrome (POTS).
I’ve been experiencing symptoms such as rapid heart rate upon standing, dizziness, fatigue, and cognitive challenges—many of which align with POTS. I understand this condition isn’t always familiar to providers, so I’ve prepared a brief patient guide to help explain my experience and share trusted clinical resources.
I’m hoping to connect with a provider who is open to exploring POTS as a possibility, and who can help with diagnostic steps, symptom management, or referrals if needed. I’m not asking for a diagnosis upfront—just a collaborative conversation and a chance to be heard.
I also live with [related conditions or symptoms—e.g., connective tissue issues, sensory sensitivities, or chronic fatigue], which may overlap with POTS. I’m happy to share documentation, symptom logs, and any materials that support our discussion.
If you or someone in your clinic is open to learning more or scheduling a visit, I’d be grateful. I’m located in [City/Region], and I’m flexible with telehealth or in-person appointments.
Thank you for your time and consideration. Warmly, [Your Full Name] [Phone Number or Email] [Optional: Link to your patient guide or website]
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